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Parents Whose Children Have 'Uncombable Hair Syndrome' Say There Is No Way to Tame It

Inside Edition logo Inside Edition 16/09/2017 Inside Edition
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These toddlers with the same genetic condition all have such uncombable hair that no amount of brushing can keep it under control.

Two-year-olds Kira White, Jaili Lamb and Charlie Eure all have the rare disorder called Pili trianguli et canaliculi, which is popularly known as “uncombable hair syndrome.”

“There's nothing you can do to tame it whatsoever,” Kira White’s mother, Tracy, told Inside Edition. “If you take them anywhere, you probably have five or six people running their fingers through your child's hair everywhere you go.”

“Total strangers just ruffle it,” Jaili Lamb’s mother, Sara, added.

All three girls were born with little or no hair, but once it grew in, their parents knew something was up.

One mother said the hair looked like the kids had stuck their fingers into an electrical socket.

Styling the girls' hair always presents a challenge.

“Sometimes we will wash regularly and then actually try to blow-dry it down, like towards her hair, to get it to lay down for a while, and it works temporarily, but not all day,” Tracy said.

Uncombable hair syndrome is typically diagnosed between birth and age 3, and the hair is almost always white or strawberry blonde. There are only about 100 documented cases worldwide. It's believed that Albert Einstein may have had the condition.

While it is a nuisance, it's actually benign and kids often grow out of it during adolescence.

Dr. Alanna Bree, a pediatric dermatologist with the National Foundation for Ectodermal Dysplasias, looked at Jaili Lamb’s hair under a microscope for Inside Edition.

“[There is] no cure for this, but the prognosis of this is really good,” Dr. Bree said. “This is one of the hairs we see under the microscope and you can see right here that the hair has a little twist in it and because of that it makes it kind of triangular shaped instead of round and then it twists on itself.”

Straight or wild, the moms and their little ones are embracing the tots' hair just the way it is.

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