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Draft national policy for treatment of rare diseases under discussion, says govt

LiveMint logoLiveMint 11-04-2017 PTI

New Delhi: A draft national policy for treatment of rare diseases in the country along with the provisions of providing financial support to eligible patients is under discussion, the Centre said on Tuesday.

The health ministry has also placed a consultation paper in public domain which proposes to establish the identity of prescribing doctors, dispensing pharmacists and the beneficiaries with regard to e-pharmacies.

“The National Health Systems Resource Centre (NHSRC) under the health ministry has prepared a draft national policy for treatment of rare diseases in India, and is under discussion,” Union health minister J P Nadda said in a written reply in Rajya Sabha.

He said the policy will cover rare diseases, their treatment procedures, financial support to eligible patients etc. “At present, the government also waives the requirement of clinical trials in case of drugs approved for such diseases in other countries,” he said.

Also Read: Govt to revisit strategy to fight tuberculosis, says health minister

Replying to a question in the Upper House, minister of state for health Faggan Singh Kulaste said his ministry has placed a consultation paper in public domain for regulating e-pharmacies. “The consultation paper proposes to establish the identity of prescribing doctors, dispensing pharmacists and the beneficiaries,” he said.

He was also asked whether the government was planning to make ID cards must for buying medicines.

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